doodlemancy: a drawing of myself i use as my avatar (Default)
my mail-order pharmacy pushed back the expected fill date for my ADHD meds like 4 times in a row since the week before Christmas. i avoided dealing with it until today, (i have basically just been getting by with coffee. it hasn't been great.) partly because i am tired and experiencing the symptoms of several of the other million things that are wrong with me and it's seasonal depression miasma time and so on and partly because every single time i have to get on the phone and deal with this there's a 75% chance i end up spending the rest of my day in a rage or crying or both.

today i called all the places that usually have it. every tech i spoke to was exasperated because the manufacturer had been jerking them around for a while on actually shipping the medicine they ordered. then i called my clinic. they pointed me to a help line for my CCO where they can search up the pharmacies most likely to have it in stock. then i found out not a single pharmacy within my nearly 200,000 person city had my dosage in stock. it is the most common fucking dosage.

alternative medications are a problem for me because i have Basically PTSD from a bad encounter with a bad prescription once. generics are no help because all the generics for vyvanse are useless (and mostly just make me feel sick). i can't drive, so i can't just go hunting out of town. i'm basically just turbo fucked. the only good news is i'm apparently next in the queue, IF Takeda Pharmaceuticals deigns to ship any more vyvanse to my pharmacy any time this century.

i'm sick of this. i'm sick of having to do everyone's work for them, ALWAYS when it's down to the wire and/or i'm unmedicated, because everyone is more terrified of me becoming a drug abuser than they are of me becoming DEAD because i absent mindedly wandered in front of a car or something. sick of having to shout GET ME A FUCKING HUMAN at phone robots over and over and over until they comply. sick of going weeks unmedicated, grouchy and exhausted for no good reason. i lived 26 years thinking i was just lazy and unproductive and good for fucking nothing, i got on some meds that changed everything, and now i find out that the real lazy, unproductive good-for-nothings are the people that PRODUCE THE FUCKING MEDS.

i know the DEA is also at fault for some of this and fuck them too, but Takeda is clearly just fucking around right now. this might sound childish, but i think that if you do bad things to me, it is you who should experience the consequences, instead of me. and also maybe i should be paid fairly for my work ($9000000000000000000000000000000000000000000000000000000000000000000000000 per minute on the phone is all im asking)

i swear to god i'm going to start invoicing people once i am done crying
doodlemancy: a drawing of myself i use as my avatar (Default)
just kidding, this is just a vent post about the last 2 weeks of my life. some fun facts about me:
  • i have adhd
  • vyvanse works great for me
  • i also have pretty severe psychological trauma from a time some prescription meds went bad on me which has led to emetophobia and an extreme fear of unfamiliar substances
  • generic vyvanse does not work for me at all AND makes me sick to my stomach which triggers the emetophobia
  • i am also really bad on the phone, because i have trouble understanding people and i get really anxious and clam up and forget how to talk and it's a nightmare

(october 29th)

pharmacy #1: we're out of vyvanse. it'll be in on november 3rd

me: ugh whatever, this is the kind of thing i skip doses so i can cover, it's fine

(november 3rd)

pharmacy #1: haha just kidding november 10th

me (facedown in a puddle of my own blood, barely able to think or move, due to Aunt Flo's stupid shenanigans): whatever it's not like i'm getting anything done this week. guess im taking a break from my meds for a while

(november 5th)

friend: hey did you see Sun Pharmaceuticals' generic lisdexamfetamine is all fucked up and recalled?

me: ...that might explain why the pharmacy is struggling to fill my name brand stuff again ugh

(november 10th)


pharmacy #1: we will have it on november 24th

me: sure you will, sweetie. hey pharmacy #2 do you have my dosage of vyvanse in stock

pharmacy #2: yeah we have plenty of that right now

me: ok clinic can you please re-send the prescription over to pharmacy #2 thank you

clinic: yep (waits until the very end of the business day)

me: fuck's sake. it's really a waste of everyone's time that i have to go back to them like this every single time

(and at this point i start doing my research and find out, at the very least, there was a DEA rule change in 2023 that i didn't hear about that means i can have even a schedule II prescription transferred once between two pharmacies without my prescriber's intervention. why did no one ever mention this! who knows!!!!!!!!! i had been told this was impossible!)

(november 11th)

pharmacy #2: vyvanse out of stock sorry. none until the 24th

me: but you said you hhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh

pharmacy #2: sorry what i meant yesterday was we have plenty of the trash generic shit that makes you sick and useless and panicky

me:

me: okay,

me: well,

me: can we transfer it to another pharmacy

pharmacy #2: yes it looks like this other one near you has it in stock

me (stupid, expecting literally anything to ever go right): yay! one more phone call and i'm done!

pharmacy #3: hey so we tried to transfer it but your insurance said it's too soon since it was last filled

me:

me: but it hasn't been filled since september

pharmacy #3: thats weird

me: oh it's because the clinic forgot to cancel it at pharmacy #1. ugh can you cancel it or do i have to call someone else

pharmacy #3: you have to call someone else

me (dying inside): (screams into pillow)

me: UUUUUUUUUUUGH clinic can you please cancel the prescription at pharmacy #1

clinic: yes and i will call you back when it's done

me (feebly): do you have a time frame because i'm kind of scared pharmacy #3 is going to run out before they can fill it

clinic: no time frame sorry

me (too nice): ok :)

me: (screams into pillow again)

(and then the clinic proceeded to actually do the thing in a timely manner, but not call me back, but i caught it in time because i was feverishly refreshing pharmacy #1's website waiting for my old prescription to disappear.)

so here i am. with a splitting headache (from being unmedicated and sleep-ruined and furious) and a raw throat (from literally screaming into pillows because this sent me into an emotional meltdown). waiting for pharmacy #3 to notify me when it's ready to pick up. still unable to relax because what if they figure out a way to play keep-away some more lmao lmao lmao lmao

i have some rhetorical questions about this experience:
  • why?
  • why was any of this my responsibility?
  • why do i have to be everyone's unpaid intern?
  • why do i always have to be everyone's unpaid intern specifically when i am off my meds?
  • when will i get the millions of dollars in emotional damages i am clearly owed for being put through this same shit over and over and over and over and over since 2023?
  • how could anyone in this wretched world possibly believe in a loving god?
  • what if i just screamed really really loud next time this inevitably happens again? would someone help if i just started off with screaming? maybe i'll just scream
  • AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH
doodlemancy: a drawing of myself i use as my avatar (Default)
(content warning: medical abuse, psychological trauma and assault. it's a victory but the trail here was rough)
Read more... )
doodlemancy: a drawing of myself i use as my avatar (Default)
in case you somehow haven't heard, someone (as of this writing, we still don't know who, and i kinda hope we never do) murdered Brian Thompson, the CEO of United Healthcare, outside an investors' meeting a couple of days ago. (the investors went on with the meeting, because, like Brian Thompson, nothing in the world has any meaning to them except for money.) it's extremely funny and people are rightly dancing on his grave.

whenever some asshole dies and people dare to have a little fun about it, it's always followed by an inevitable wave of annoying handwringing and moralizing from the fun police. waaaaaaaaaah he was a human being! it's sad when anyone dies! nobody deserves to be murdered! what about his family? how would you feel if you were his kids, watching the entire internet celebrate the death of their father? waaaaaaaaaaah abloohoooo buhhh blahbhooaghghhh NUHHHHHHHHH sniff hork BUHHHHHHHHHHH. it's a morally cowardly position, and you also look like a total dipshit sobbing over the corpse of someone who wouldn't have pissed in your direction if you were on fire.

i think americans have a really hard time reckoning with death. i think it's kind of something we avoid thinking about too deeply. it's a really weird tangle. like there's this pretty persistent obsession with true crime, a lot of our media is centered around violence, we love to Celebrate The Troops, and yet when it comes down to a real person's death we kind of can't deal with it. if you've had to deal with loss, you know how isolating it can be to still be grieving but also be at the point where everyone else who wasn't involved... kinda just wants to be done with it. go back to work. go back to school. just get back to your life.

we also really like to ignore that violence and killing have always been major components of social change. every right i still (supposedly) have under US law was established partly through violence. the 8 hour work day is partly a result of union organizers straight up killing their shitty bosses. Suffragettes killed people. the civil rights movement in the US wasn't just MLK speeches and sit-ins, there was a fair amount of violence and threats thereof. it's just kind of how things work. if you're in power, and people ask you to stop killing a minority or something, and you go "nah, i don't wanna," and there's no way to make you stop other than violence, well, they're probably going to do violence to you.

but i think the thing people like to ignore the most is that violence isn't just one person hurting or killing another. what the pearl-clutchers don't seem to grasp is that the healthcare system in this country runs on violence. it is a meat grinder, and it isn't hard to find enough horror stories about United Healthcare (and every other health insurance provider under the sun) to give yourself clinical depression in under 24 hours. these companies exist to generate profit, first and foremost. they do not actually exist to help anyone. it's in their best interests to do whatever they can to get out of paying for your treatment. it is literally their duty to their shareholders to make sure that they pay out as little as possible. and what that leads to is a lot of extremely preventable mass suffering and mass death.

if you're in charge of a company that's responsible for mass death, you know what you are? a fuckin' mass murderer.

i kind of wonder what the venn diagram is re: pearl-clutchers and people who have never experienced a serious health issue or had to deal with bad insurance, because it's baffling to me that any normal everyday person with a normal everyday wage would waste their breath boohooing over the death of someone who happily would have tortured or killed them for profit. i think for some people, maybe it's hard to admit that this is our reality. they really want you to be exaggerating. it's like how people will be like "well surely if you were REALLY disabled you could get disability pay!" or whatever, because they've never had to interact with that system and they NEED to believe it would be there for them if they needed it. maybe for some people it is easiest to ignore the sickening noises coming out of the meat grinder and just assume those people are doing it wrong, or something.

here's one of the stand-out parts of this, for me: even over on LinkedIn, the safest place in the world to be a CEO, people were showing up to Brian Thompson's comments sections on his post to tell him off for being a soulless piece of shit. the thing is like. even if you are relatively comfortable, the healthcare system will probably fuck with you (or someone you care about) at some point, unless you're really, really, really rich, and so is everyone you know. the middle class isn't safe from being bankrupted by cancer. hell, in some situations you're probably MORE likely to be financially ruined by healthcare if you're too wealthy to qualify for medicaid or something.

i've been put through hell too. i've never had the displeasure of dealing with UHC specifically, but i've had claims denied for necessary healthcare and treatment delayed for months and months. it's part of how i ended up having to leave my old job. i've suffered a hell of a lot at the hands of the US healthcare system, even with medicaid, in Oregon, which is about as least-bad as it gets. i have watched this system try to kill family and friends. it's tried to kill me, too. i am alive in spite of it. like dealing with loss, it can be very isolating. it's often a solo battle against an unfeeling machine that doesn't care. a thing i've ended up saying a lot is "no one who cares can help me, and no one that can help me cares." and if misery-profiteering fuckheads like Brian Thompson didn't exist, medicaid probably wouldn't be so goddamn stingy about a lot of stuff I legitimately need. even the most generous public plans are made worse by the mere existence of for-profit healthcare, because their entire business exists to drive up the price of any and all medical care.

i saw someone say "people don't realize they're arguing over the death penalty," which is uhhhh, an interesting way to misunderstand the situation i guess. the guy's already dead; we're mostly arguing over whether or not it's funny. the death penalty is when the state kills you for a crime. the state didn't kill him. the state never would have lifted a finger to stop him, violently or otherwise, because under our laws, he wasn't a criminal, he was a fucking businessman. like... if you're mad at people joking about this i do need to know how mad you are that it isn't a crime to literally kill people by making healthcare expensive and impossible. i need to know how mad you are about the fact that sometimes people who are sick or bleeding profusely or KNOW they're having a heart attack end up driving themselves to the hospital (or asking someone to drive them) because one out-of-network ambulance bill would bankrupt them. i need to know how angry you are about how often people in this country are forced to choose between surviving a serious illness and dragging their families further into poverty, or giving up and dying so their spouse and kids don't lose the house.

every single CEO profiteering from medicine/healthcare is a mass murderer, and deserves the grace, sympathy, and empathy i would extend to anyone else with the blood of thousands on their hands. which is none. fuck 'em. i don't think this is a particularly inflammatory or shocking opinion. i don't think i'm super edgy for having it, or whatever. i think it's normal to hate mass murderers. i think it's normal to feel very Party Hat about it when they die.

i know this isn't exactly justice served and that killing the CEO doesn't kill the company. they'll just find a new monster to replace him. but the public response to this, for the most part, has been a really fun time, and it rattled all the other healthcare companies enough to start taking down staff photos off their websites. we all just got a very, very clear picture of how much everyone fucking hates them. and even the people crying and hand-wringing and pearl-clutching, for the most part, seem to agree that healthcare needs to change. even if this doesn't turn out to be a watershed moment (and i'm not really holding out hope that it will be), it is very fucking funny, and this widespread collaborative grave-pissing gives me a shred of hope we might still be able to change things someday.
doodlemancy: a drawing of myself i use as my avatar (Default)
no more bullshit, universe, i am tired

after i dusted out my PC i felt Bad. real bad. thought i had accidentally inhaled a lot of dust. like... i wore a mask and opened the windows and turned on the air purifiers (my PC case is so heavy i literally cannot get it outside to dust it bc i will shatter my spine). turns out no, i was in fact coming down with the caught-it-from-mom illness. i thought maybe i'd managed to fend it off but my immune system always disappoints tbh

it's not covid, apparently, but it did do some really exciting things like completely prevent me from sleeping the first night (i got like 2 hours of... Aware-Sleep) because i had indigestion from hell (just felt like i'd chugged a whole bowl of soup in 10 seconds for like 30 hours). and then it made me partially deaf for most of yesterday. all i've really been able to do between periods of lying in bed listening to podcasts through whichever ear is working is play a little bit of video game or watch a little bit of anime (and then get tired after 20 minutes)

but i do have some cool news:
Potion Stand Story will be in Indiepocalypse #60 (coming out in January). mario_wahoo.wav

im finally alive enough to sort of do tasks again for the first time since Sunday so i'm working on my pages for that and trying feebly to fill Etsy orders auuauuauahhhgh. there's a lot of just. stopping. to play more vampire survivors or lie down

also i re-learned something i technically already knew but kinda forgot. do you use a wireless mouse (or keyboard)? do you have intermittent issues with baffling mouse (or keyboard) lag on your PC? have you thought "it's not a hardware issue, bc it happens most with specific software?" YEAH I THOUGHT THAT TOO. BUT. guess fuckin what, usb 3.0 ports (the pretty blue ones) with literally anything plugged into them, wireless or not, can quietly emit a signal that sometimes interferes with other wireless signals. literally all i had to do this entire time to get my mouse to work better was swap the port i had the receiver in with the port where i usually plugged in my game controller. to be clear these ports are directly adjacent, it was literally a matter of which one was in front and which one was in back. so the rule of thumb, i guess, is Transmitter On Port Closest To Its Device Always, no matter how within-range you think you are.

before i swapped the ports i was having a terrible time trying out Metal Slug Tactics (pretty cool so far; im too stupefied to play much of it but it's a neat and unique tactics game imo) bc my mouse kept lagging out and skipping around. after the port swap? suddenly everything is FUCKING FINE. i found this out by buying a new mouse (which turned out to be too small), plugging it into a different port bc i was tired and lazy, thinking "guess my old mouse was just dying," realizing the new mouse was too small and was Hurting Me, swapping the old mouse back into the new port, remembering a post i'd seen on cohost a while back and then screaming

if i had done this earlier this year making Potion Stand Story would have been like 500% easier (VRM Posing Desktop is the software i used to pose the sprites, and i could only have it open for about 10-15 minutes at a time before the mouse lag got so bad i had to alt-F4 out). SIGH. at least if/when i do extra content again it'll be easier. even most of my Ws this month are kinda Ls. kinda wanna turn on noclip irl and descend into the earth's firey core, but i have to finish Iron Company, sooooooooooooo

doodlemancy: a drawing of myself i use as my avatar (Default)
WHAT'S UP GANG, I'M WEATHERING THE SLINGS AND ARROWS OF OUTRAGEOUS MISFORTUNE HERE AT DOODLEMANCY HQ. i tried to put this under a cut but it doesn't work probably because of the comic relief giant text or something sorry sorry vent post sorry

SUNDAY

• microwave go asplode. buy new microwave. sigh.
• AN interpersonal conflict transpired that i will not recount because it has already been settled but let it be known that it was GNARLY and i was VERY UPSET for the next 24 hours ish
• also played some Vampire Survivors. loving the Castlevania DLC

MONDAY
• VERY UPSET DUE TO THE AFOREMENTIONED EVENT for most of the day
• also felt like death due to my stupid uterus wasting all my goddamn blood on its insufferable hobby as usual
• also played some Vampire Survivors, that was nice

TUESDAY
• tried really hard not to freak out
• also played some vampire survivors
• 2 clonazepam evening
• everything looked really bad but i went to bed with shred of hope left in my heart

WEDNESDAY
• FUCK
• that's what i get for having a shred of hope i guess
• the very moment i sit down to try to distract myself from all of the FUCK with some drawing and vidya games, the power goes out
• for 6. fucking. hours.
• sobbing emotional meltdown because i just wanted to numb myself and not wallow in despair/panic and i can't concentrate on reading and i can't concentrate on anything and i just wanted to play a stupid video game and not think about how fucked my country is
• Vampire Survivors is not as good on mobile with someone with my kind of chronic pain and also it's really hard to start all the way over
and it was one of those "tease you with later and later power-on estimates" situations with the power company of course, because Portland General Electric needs my bill to be $40 higher per month every single year or their CEO will starve to death on the street, but they can't afford to take 2 seconds to tell the website what's happening. text on a website COSTS SO MUCH MONEY, YOU KNOW,
AND I HAD JUST BOUGHT GROCERIES SO WE HAD TO PUT THEM ON ICE IN A PANIC when the estimate finally got more honest
• try to play Tiny Glade once power is back on but it still does not work (persistent issues with GeForce graphics cards that cause scary overheating and other weird behavior)
• whatever. more Vampire Survivors
• also see that another game i kinda wanna try is out (Metal Slug Tactics). but i bought a surprise microwave this week. so maybe i'll try to get a Steam refund on Tiny Glade since it literally does not work on my computer and then refund/points i have would cover it
• extended battle with Steam customer service trying to get them to fucking read. "you played it more than 2 hours" YEAH WHILE I WAS TROUBLESHOOTING, DINGUS. this exchange started off with me being very friendly and providing plenty of reasonable evidence as to why i was owed a refund (linking specifically to the thread where the developer admits to and explains the problem and that they're working on it with Nvidia but have made no progress so far, which i sympathize with-- i'll 100% for sure re-buy it if they ever get the problem fixed). after 5 rejected attempts to communicate the problem, i loosened the seal on the foul demon Karen, telling them this is is fraud actually, you have now stolen money from me by selling me a game that i cannot play even though my PC technically meets the specs, and threatening to take it to the FTC and my state's AG. went to bed pissed about getting screwed by Steam, who i've NEVER had a problem with despite my cursed status as a magnet for exactly this kind of "outlier problem nobody wants to pay attention to/knows how to solve" kind of issue lmao

THURSDAY
• Mom sick. i'm coming down with whatever she has. which means no anime day this week, and no Goblin Alone Time to recover from my emotional exhaustion, and uuuuuuuugh i am probably about to get slaughtered by a virus soon
• got to talk to my therapist and at the very end of the call Steam popped up with the refund i was owed (fuckin finally, that was after 6 tries)
• not feeling too bad myself yet, but too emotionally exhausted to do anything but fuck around
• Vampire Survivors (still waiting for the refund)
• make something fun
• feel kinda better

FRIDAY
• still not very sick. time to try to do some work before i-
• where did the internet go
• NO
• FOR FUCKING FUCK'S SAKE
• Netgear router-modem-thing pronounced dead at approximately 1:30 PM, rest in fucking pizza
• Best Buy trip. in mask. sweaty and greasy because i was going to take a shower later after doing some chores. find out i need new glasses so bad because i literally cannot find things using the signs without help
• $$$$ threeee hundreeeddd and fiiifty doollar roooooouteeeerr purchaseeeeeeee surpriseeeeeee $$$$$$ (i wanted a nice one, tariffs are coming hahaha lolsob)
• please god let the setup be easy. have i not suffered enough? i am already being crucified. must we nail this cross to a larger cross. but ha ha i know it won't be easy because it's never easy with a new router, something insane will always happen, it is a crying-and-hair-pulling event every single time, it will NEVER be good, the instructions are ALWAYS wrong about something or your ISP shits its pants about it or something and then it's PHONE HELL FOR YOU, BUSTER
• try to believe anyway
• follow the instructions
• instructions, predictably, do not work
• 6 hour ordeal during which the first chat agent asks me for the wrong type of MAC address and says my router doesn't work but they can get me a tech tomorrow, second agent (phone) calls me to follow up and says no, no agent until sunday, tries to help me again, asks for my CMAC address, secretly typoes it, and tells me nope there's nothing we can do, wait until sunday, i get mad, i try to bruteforce my way through, i complain about how bad the xfinity app is on google play because self-setup just isn't working right, agent 3 (chat again) tells me my coax cable must be bad, diagnostics on the router say the coax cable is fucking fine, i get an e-mail about a dev response to my app review that links me to a sprinklr chat which is apparently the only way to contact anyone who actually knows what they're doing. and in sprinklr you can send photos. so i send tons of photos of the router and my diagnostics and stuff. some guy named Ray discovers the CMAC typo and fixes my connection instantly. i tell him he is a superhero and that he has saved an Etsy shop and my sanity and my life
• (for the record i was nothing but cordial with everyone i spoke to, this was not a "people refusing to help" situation this was a "people not really being equipped to help" situation mostly. i only undo the seal on the foul demon Karen when some very clear lines have been crossed and there is no longer a sympathetic interpretation of what's happening to me. I WORKED RETAIL.)
• at this point i have been in a state of Stress Rage for so long i can smell my own armpits
• eat a butterscotch candy in the shower while i turn the water up and overheat myself on purpose so that i can turn it to cold and reset my entire Sensory Being

SATURDAY (TOMORROW)
• i assume either my graphics card will die or i will get appendicitis or something
• also the continued slow slide further into fascism i guess
• also probably Vampire Survivors
• this is fine.jpg
 


doodlemancy: a drawing of myself i use as my avatar (Default)
not gonna lie, i'm in a dark place today. it's real bad. my mental health has not been this in the toilet in a while. i have had some thoughts that are going to the therapist with me tomorrow. but i'm not gonna give in to those thoughts.

i'm going to keep working on my gay little visual novel.

i'm going to keep running my gay little sticker shop.

nobody else will get the satisfaction of killing me with my own hands.

spite isn't my preferred fuel. it doesn't burn very clean, but it burns.
doodlemancy: a drawing of myself i use as my avatar (Default)
there's been another wave of Alt Text Discourse on bluesky and uuuuugh. i need to get some shit out of my system. this maybe seems petty but it's dug up Some Feelings. just at the top here i'd like to say: i am not asking for solutions to make alt text easier for me to write. i know them. i know. i know. i know. the badgering and the constant assumption that i just don't know how to write it, or that i just don't know the work-arounds for common blocks, is part of the problem here, and i'm going to address that here. it's just, this has dug up some legit disability trauma for me. please offer me a little grace while i Get Real Mad.

this accidental essay started off as an attempt to talk frankly about about alt text, demands thereof, and why some disabled people might struggle with it. but it's kinda more about the cumulative exhaustion that happens via the "small" and "easy" things people ask of you, when you're disabled.

up front: i am decidedly non-neurotypical; i am diagnosed with ADHD and anxiety, and i've been therapist-and-RAADs-R-test diagnosed as "almost autistic but not quite but kinda." i have a myriad of physical conditions that cause chronic pain in my hands, back, feet, and my most hateful organ, my godforsaken uterus. more often than not, i sleep like garbage. this isn't the full list of what's wrong with me and frankly, i don't owe everyone an explanation further than "i'm disabled and that means sometimes i can't do stuff," but now you know.

also up-front, i think alt text is a good thing that people should write when they can. i do not think it is inherently ableist or too big an ask to make "write alt text as often as possible" a social expectation. i think it is good to try to be inclusive. there are also a lot of benefits to alt text even just beyond inclusivity. it makes images searchable. it gives context to people who want to know what a screenshot or a gif of a show or a video game is from. it is a good thing to have. i make a good-faith effort to include it whenever i can, which is most of the time. if a person who actually needed an image description asked me for one i hadn't provided, i would oblige.

there's this sentiment floating around that writing alt text is practically effortless, only takes "a few seconds," and could not possibly ever be difficult for anyone to write.

here is a short list of some possible non-malicious barriers to people writing alt text:
• chronic pain flare-up
• brain fog from chronic fatigue, dyslexia, autism-related speech stuff or other brain conditions making it difficult to translate image to text
• language barriers
• trying to post something time-sensitive really fast between tasks
• for whatever reason, does not want people finding this image via keyword searches
• for whatever reason, does not want to be heard using speech-to-text to describe the image
• for whatever reason, CANNOT use speech-to-text to describe the image (device malfunction, can't speak due to illness or disability, in a noisy place or a library, etc.)
• demand avoidance/executive dysfunction (really common with adhd/autism!)
• literally just forgot (yes there is a reminder function; but not everyone knows about it yet and you shouldn't just assume that they know about it and haven't turned it on!)

more specifically, when it comes to art, alt text can be really difficult when:
• the image is meant to convey something other than words, or is very visually abstract/non-representational
• trying to verbalize what's going on would kinda be presumptuous or a prescriptive interpretation of a piece of art that is intentionally ambiguous and/or supposed to be open to individual interpretation. sometimes what you are asking people to do is objectively describe a Rorschach test, and uh... i dunno how to explain to you why that doesn't work if you don't already understand, sorry.
• sometimes trying to further describe the image makes the artist feel intensely awkward/uncomfortable for some reason (happens to me a lot with my art-- writing a description of something i'm not even sure i'm successfully conveying in the image makes me really, really uncomfortable sometimes, i see a lot of artists describe similar feelings)
• in the case of using #Alt4Me for their art, the artist may either feel weird about other people trying to interpret their artwork for them, or there's just no way to reasonably expect random strangers to even have context for what you're posting/recognize the characters or understand what's going on if they aren't in your niche/etc.... for example, i can reasonably expect that an iconic fictional character like Mickey Mouse is one someone helping out in that tag is likely to recognize, but there's a much less than 1% chance any of them will know who the hell all the characters in my little no-name visual novel are, and i can't expect them to do the research on that for this volunteer activity that already takes quite a bit of time and effort.

speech-to-text is there. sometimes i do use it to do image descriptions. but for me, the way my brain is wired, writing and speaking feel like they come from entirely different places. trying to write something that isn't conversational with speech-to-text drives me absolutely batty, because the keyboard is a different tool than my voice. when i'm not at a keyboard, i feel a lot more limited in what i'm able to write in a way that is, ironically, kind of difficult for me to verbalize. replying to a text the way i would reply to someone talking to me is easy. writing part of my visual novel script or describing an image is significantly harder. and sometimes my brain is just fogged up, or clogged up, and i can't make it go. sometimes i stare at a picture and i know what's happening and absolutely zero words come to mind. there's a reason i'm a visual novelist and not just a novelist, okay? i am very often very good at describing things! but sometimes i can't do it to save my fucking life. this is an inconsistent brain behavior, often further muddled by how much pain i'm in at any given moment, how much or how little i have slept (chronic insomnia is a bitch) and/or what level of executive dysfunction i'm at. it is often a roll of the die how capable i am of doing this. sometimes i roll a nat 20 and a perfectly worded image description flows out of me like soft serve into a cone. sometimes i roll a 5 and it comes out real clumsy. sometimes i roll a nat 1, and i can't word picture brain say thing at all.

so there you go. a whole bunch of reasons people may not be able to write alt text, all of them decidedly lacking in malice.

unfortunately alt text has become a moral crusade for some people, and as poisoned as the phrase "virtue signaling" has become, that's... kind of what it is at this point. the opinion of a certain contingent of bluesky (and mastodon, and tumblr) users seems to go like this:

• alt text makes images accessible for visually impaired people.
• therefore, if you don't add alt text, you are excluding visually impaired people.
• alt text is "easy" to write and "only takes a few seconds" (OR: "i have a disability that makes it hard to write, but i've found a consistent workaround for myself so i still always do it")
• there are a lot of informational posts about alt text that get passed around bluesky regularly, and a setting you can turn on that will remind you to put alt text on images before you post.
• therefore, "everyone" on bluesky should already know about alt text and know they should be doing it.
• therefore, if you don't include alt text on every single image you post, you're excluding visually impaired people, perhaps intentionally, because you're too lazy and ableist to take a few extra seconds to write some text, a thing that is easy to do for everyone all the time in every situation.

once you end up in this mindset, anyone who doesn't write alt text is an irredeemable monster; therefore, anything you do in the name of more alt text is morally correct. obviously. the "altometer" lets you get a look at how many images on bluesky have alt text, and a lot of people have latched onto this obsessively and made it their sworn duty to increase this number by whatever means they deem necessary.

sometimes this comes in the form of outright harassment-- someone shows up to call you an asshole for not including alt text. sometimes it's more passive-aggressive or guilt trippy-- "if only you'd put alt text on your beautiful art, maybe i could start sharing your posts" or "nice! where's the alt text though?" or "i wish this had alt text" or "it'd be nice if you cared enough to make this accessible to blind people". a lot of Friendly Reminder™ posts get passed around that assert that it is a "bare minimum expectation" and "common courtesy" and that anyone who does not do it is lazy, and there is "no excuse" not to do this easy, simple thing.

here are some more direct quotes from some of the alt text cops (usernames redacted on purpose. do not hunt down and harass these people, because A. it might cause rebound harassment against more disabled people, and B. it won't help.):

"if you don't have the spoons to write alt text, you don't have the spoons to post the picture 🤷"

"i tried that route*
and got people making excuses not to use the enforced alt text because "waaaah i don't have the spoons to post with alt text" ...then don't post."
*i think someone else in the conversation had suggested just telling people to turn on the alt text reminder thing rather than scolding.

"if you're blaming a lack of spoons, but you had the energy to post, spoons is not the issue. alt text is cantrip level shit."

"if you don't have the spoons to write the alt text don't post the image. lateral ableism isn't cool." (i love the subtle irony of this one, as if it isn't a prime example of lateral ableism to basically tell people "if you have a disability that isn't the one i care about, just don't participate")

"I'm exhausted of reminding people. I'm just blocking you if you can't be fucked. Don't play dumb either. It's 2024. You know wtf ALT text is. Assholes."

"When you upload pics there's a place to edit them and add ALT text before you post. It's a super cool way to let visually impaired social media users know you thought about them for 5 seconds."

"Today of all days to call me ableist. When I literally fell out of my shower, am confined to my chair, can't see anything beyond 5 feet in front of me, can't hear, need my partner to dry me off, wipe my ass, dress and feed me. There is no excuse- EVER- not to use alt text. ESPECIALLY if you're otherwise disabled. You should absolutely 100% know better."

"Can we create a bot that alt text shames people like hi great pic please use alt text next time"
followed by a reply from someone else: "Need to have a load of randomised responses for it, sometimes it's calm, sometimes it's at its limit"

"if you don't alt text you don't belong here. we have a culture of inclusitivity. YOU CAN'T SIT WITH US"
(no, this one is not a joke, i checked, lmfao, they were saying this in COMPLETE FUCKING SERIOUSNESS)
 
this all sucks. the quotes above? fucking suck. this is not helpful. this is a bunch of garbage, it stinks, ew, i would not put this in my kitchen trash, i would take it out to the outside bin immediately. i don't think these people are necessarily ableist. but i do think they're ignorant, i do think they have not thought this through, and i do think what they're saying is ableist and shitty as a result of their ignorance. just like you don't have to be an outspoken, committed homophobe to say or do something homophobic, or a frothing-at-the-mouth antifeminist to say something misogynist, you don't have to be an ableist to perpetuate ableism. you don't even have to be abled to say something ableist, example: some of the people in the quotes above there!

sometimes people also manage to make this xenophobic! there are people who speak english as a second language, who post on bluesky primarily in english because it is a website where people primarily use english-- but alt text might not come as easily in english. a korean artist i follow got yelled at for saying they were going to do their alt text in korean because it was hard to do it in english. and i don't even know what to say about that other than what the absolute fuck?

social media is social. it is conversational. a casual post is not an assignment you're turning in. it is a way people socialize. it is mostly temporal and fleeting. "just don't participate at all if you aren't at 100% today" is not a very inclusive thing to say. it is, in fact, pretty exclusionary toward a lot of disabled people.

here's a true, depressing fact: i never feel good.

i can't remember the last time i felt like i was really at 100%. i am mentally ill and physically in pain 24/7/365. "good days" are just... not a thing for me anymore. my baseline is fucked. i had trouble with physical therapy because i can't really imagine not being in pain, and that fucks so much with your perception of how well you're doing. i have days that are less bad than others. i am always running at a deficit of energy. if we want to keep using D&D metaphors here, fucking everything i do is casting from hit points. and i don't talk about that particular fact very much, because it's fucking depressing. it's demoralizing. for me to voice, and for others to hear. it makes friends not want to ask me to do fun things because in the back of their minds they will know i'm in pain the whole time, or at the very least, i'm going to be in pain afterward, and they'll be right.

if you don't live like this you don't understand. you don't understand what it's like to never be able to do anything without considering how much it will (not might; WILL) hurt you. to be limited, always, even in leisure activities. to have to play video games in 20-minute on/off sessions with a timer on because otherwise you don't get to enjoy them at all. to not be able to hold books open or close enough to read for very long without pain, or without getting a headache, or without your ailing brain just shitting out on you and refusing to focus. to have to clear your schedule to do something labor-intensive like baking cookies or scrubbing your shower, so you can spend the next day watching netflix in bed with ice packs on everything that hurts. you don't understand how much it wears on you to never, ever, ever experience a waking moment where you are not in any kind of pain. and you don't understand how exhausting it is to have people speculate and prod and ask prying questions, constantly, just to check and make sure you aren't "making excuses." to have other people with disabilities look at you and go "well i'm disabled and i can do it, so you have no excuse." you don't understand what it's like to have doctor after doctor shrug at you, and to have everyone around you demand a specific diagnosis that you've been trying to pry out of medical professionals for years before they'll believe that anything is wrong with you.

it is god. damn. exhausting. the frustration, the grief, the anxiety about Explaining It All to everyone new you meet. having to give everyone the primer: a lot of things are wrong with me, and if i don't respond to your texts or come to your party or i cancel plans a lot, it's not because i hate you, it's because my body hates me. the inevitable poverty, if you aren't lucky and privileged enough to escape it. the feeling of being a burden, because living independently is impossible. again, i don't bring it up much because i tend to spiral when i do. one of my coping strategies is perpetual distraction. it's why i'm never without my ear buds and a playlist full of podcasts.

here's a little story about ableism: one of my conditions is PCOS-- polycystic ovarian syndrome. it does a really long list of shitty stuff to you, but its favorite thing to do is give you "should i go to the hospital?" level period cramps. many times, i've had to google "appendicitis symptoms" again to try and suss out whether i should be at the ER. before they were mostly controlled with medication, my period cramps were so bad that i would be stuck in bed, crying my eyes out, for most of a day out of every month. when i would struggle to school the next day, still in terrible pain but just functional enough to walk and sort of pay attention in class, gym teachers would tell me "if you're well enough to be at school, you're well enough to run the mile." if i wanted out, i needed a doctor's note. i didn't have access to a doctor at the time-- this was in middle/high school in the 2000s, years before Obamacare made that ever so slightly more accessible-- so either i had to suffer, or my grades did.

what i can or can't do in any given moment is a calculation based on several factors. it's really variable day-to-day, hour-to-hour, and it's never just about one thing, and other people can't do that calculation for me. but i sure have watched a lot of people try.

when i see some shit like "if you can't write alt text, don't post," what i hear in my mind is my fucking gym teacher. and no, it's not the same situation. it's not the same size of an ask. it is definitely worse to make someone in severe pain run a mile under threat of detention or bad grades. it is definitely harder for me to do that than it is for me to write alt text. but the underlying twisted expectations are pretty much the same. it's unfair in the same way.

if you can do x, why can't you do y?

it's just a little extra effort.


this is how the ableds get you. many small things. the individual asks are small, and not unreasonable. but they don't consider the accumulation, or the way disability can fluctuate day-to-day. so they'll assume you're just being dramatic or "using your disability as an excuse". that's always a fun one. how dare any of us need an excuse based on our disability.

you ever hear the phrase, "death by a thousand cuts?"

you ever hear the one about the snowflake who swore up and down it had nothing to do with the blizzard? or the camel that was just making excuses about not being able to carry one little extra piece of straw?

my first therapist (ditched him after a month; hope he found something else to do) explained to me very helpfully that a coffee shop job would be sooooooo easy with severe wrist and shoulder pain. not that difficult to pick up a cup or pull a lever. that's easy when you're in pain. and there definitely wouldn't be any cumulative stress from doing it hundreds of times a day.

bullshit like this worms its way into your brain. you hear it over and over, from people you like, from people you trust, from people with authority over you, and even when you know they're wrong, you can quite easily learn to gaslight yourself into thinking you're fine as long as the pain isn't too bad. i'm not crying. i haven't vomited or collapsed, so this is bearable. this isn't the worst it's ever been. other people have it much worse and still do things. so i should just keep pushing forward. i'm always in pain, so it doesn't count until i'm in so much pain i can't move anymore.

this is part of how i landed in physical therapy, more than once. i wasn't broken enough. not until i was so broken it was desperate. (this is also how government disability assistance and health insurance treats you, most of the time. hahahaha. scream)

invisible disability inevitably leads to questioning, and incredulity, and guilt trips from others. if i sound too defensive here, it's because i am. because the little indignities and the doubting looks and the prodding questions add up into trauma. i have spent my entire life being told that i'm "just making excuses". some of my clearest childhood memories are of being accused of faking the stomach aches my anxiety disorder gave me. of being asked "are you sure you don't feel well, or do you just not want to be in math class"? and shit like that. i cannot describe to you how scared i am, every time i have to make an accessibility-related ask, that i will be sneered at and not be believed (this is why i am sympathetic to the frustration of visually impaired people who don't want to have to ask for alt text-- i get it, i really do, and it sucks for everyone here). i spent 2 years fighting my old workplace for proper disability accommodations, until i was so broken i had to quit anyway shortly after i got them. so i have a bit of a chip on my shoulder, and i'm kind of always watching the horizon.

i think the reason this bothers me so much is that it really is a microcosm of the downright pathological need of the abled to means-test fucking everything, just to make sure you aren't "getting away with being lazy". it's their #1 brainworm. the worst thing they can think of isn't a disabled person falling through the huge holes in the government safety net, it's a "lazy" person "getting out of work" by "faking a disability." if you're not doing what the ableds want you to do, you have to have a really good, solid reason, and it has to be a good reason by standards that they can understand. it can't be anything that looks like "laziness" to them, like executive dysfunction or chronic pain. you have to be an amputee or something, and even then, sometimes they'll still be like, "well, let's try to figure out what jobs you can do with no legs and CPTSD" or whatever. because the #1 thing we have to avoid is not unnecessary human suffering, it's laziness. the expectation is that you should and must bear whatever you technically can without physically collapsing, no matter how miserable it makes you, no matter how much of your life it consumes, and you should only get a break when you've either earned enough to retire, or you literally can't do anything that makes money. this expectation is also deeply unfair to abled people. nobody should have to work as hard as most of us do just to pay the bills. no one should have their entire life consumed by work almost every day. but because this is what is expected of the abled, many of them seem to see disabled people getting accommodations at work or disability pay as "getting out of things," as a lucky break, as getting to have it "easy," as if the Americans With Disabilities Act came into existence without the loud and sustained and painful protest of the disabled, without them literally crawling up the steps of the capitol to shame politicians into doing the bare minimum. as if ableist discrimination isn't one of the most common forms of discrimination in the workplace. as if being able to stand for 8 hours a day and lift 50 pounds aren't still in almost every job description for almost every job that doesn't require a degree. jesus fucking christ.

it's also an attitude fueled by and fed back into "inspiration porn" stories about disabled people who "don't let their disabilities hold them back," written mostly, i think, for the benefit of abled people who do not want to believe that their lives could ever be irreparably changed by an accident or the emergence of a chronic condition. it's the scourge of the phrase "differently abled," which i've always hated. it's important for abled people to understand that disability is not condemnation to a pitiable life of constant misery. it's also important for "disabled" to actually retain its meaning. i am disabled. there are things i can't do. perseverance and dedication aren't meaningless, but no matter how dedicated i am, i will never be able to do a 12-hour charity gaming stream; my hands will give out. i will never be able to consistently work 40-hour weeks; my body and mind will fall apart under the stress. it is not "letting my disability hold me back" when i say that these things are not possible. there is no combination of positive thinking, re-framing, strategizing, and accommodation that will make me as functional as a healthy person without any mental illnesses. there are no buff spells that can completely counter my natural debuffs. i've accepted this. others seem to struggle with it.

simply put, i think a lot of the ableism i face is rooted in abled people not wanting to believe that what's happened to me could happen to them. if i'm faking, or exaggerating, or i did something wrong and it's my fault, that means they're safe. it's the same reason they will then switch to asking if i've been to the doctor, or tried yoga, or tried whatever fucking joyless cardboard-eating diet they've heard about that supposedly cures chronic pain. simple acceptance of reality-- that the human body can and will betray you, in ways that are terrible, unfair, and often random-- is too scary. if you're reading this and you aren't disabled in some way, hey, guess what. you will be. unless you die instantly in some kind of accident before you age enough to slow down, you will become disabled in some way. the fragile meat robot you are piloting will betray you.

this Alt Text Crusader bullshit is also built on the assumption that being visually impaired is inherently a sad state to live in and that to be blind is to fundamentally "miss out". i'm yelling and pointing again to Against Access by John Lee Clark, an essay by a DeafBlind person that changed my whole perspective on how to approach alt text (keep it short and sweet rather than getting verbose). i obviously can't speak personally to this. there is no blanket solution. visual impairment is as diverse an experience as anything. i've tried to make a habit, always, of listening to what other disabled people say, and he isn't the only person i've seen voice these feelings-- that it's tiresome when sighted people assume their job, when writing alt text, is to painstakingly describe every single detail and get as close to 1:1 image-to-text as they can. in reality, alt text is often a creative act, something more akin to translation and localization of media from one language to another.

when i made a thread about this a while back on bluesky, someone asked, "how do i tell the difference between disabled people who legitimately can't write alt text, and people who are just lazy?" and here's my answer. and this is also my answer to "how do i tell who's faking a disability" in general: most of the time, you can't, and you need to accept that. you have to drop this fucking disability cop stuff. it's not helpful. you are not and cannot be the arbiter of who is and is not disabled enough to deserve to post a selfie without alt text and not get fucking yelled at. if you are always trying to sniff out who's "just being lazy", all you are doing is perpetuating the very ableism you claim to hate.

you just have to trust people. you just have to give them the benefit of the doubt. you have to think real hard before you bust out words laden with as much presumption as lazy or deserving or easy. because the cost of believing someone who says "this is hard for me" and maybe getting duped is preferable to the cost of guilt-tripping and ostracizing actual disabled people. you're just going to have to act in good faith. and i know that's a foreign concept to a lot of people with social media brainworms, but i highly suggest trying it. you'll be shocked at how much less angry you are when you don't immediately look for the most malicious interpretation of every single person's actions. the world feels a little less cruel when you aren't reading in cruelty that isn't there.

when you piss in someone's mentions over this, you could be making some really weird assumptions, including but not limited to:
• that they don't have any disabilities you don't know about
• that you are owed a disclosure and/or full explanation of any disabilities they have
• that any disabilities they do have are all 100% known to them (ex. lots of autistic/adhd people are undiagnosed and lots of us struggle with image descriptions!)
• that they have never been confronted about this before by anyone (psst-- it's very possible you're needling someone who has already been harassed about this enough!)
• that perfect accessibility for everything, to everyone, is a realistic goal we can meet by beating up on people about it, rather than an ideal we should strive for while understanding there can, will, and sometimes must be exceptions

i see a lot of people make passive-aggressive (or just plain aggressive) demands for alt text, get rightfully rebuffed for being shitty about it, and then go "i wasn't ATTACKING them! i was just ASKING for them to please MAKE THEIR POSTS ACCESSIBLE TO EVERYONE." it's crybully bullshit. it's social justice language scrunched up and loaded into a BB gun so they can take potshots at people for fun, and that sucks. you are not actually prioritizing the needs of visually impaired people; you are seeking acceptable targets for your own vindictive, ego-padding behavior.

incidentally, if you want an actual target for productive criticism, maybe consult with the companies that make screen reader software, because a lot of screen reader software sucks so bad it doesn't even read basic punctuation! if you really, truly care about accessibility, there are systemic problems that need solving. trashing randos on bluesky isn't going to change the world.

if you want to share something but it doesn't have alt text, "may i add alt text to this post?" is pretty non-confrontational, does not assume ignorance, and doesn't imply any kind of accusation or guilt. if they don't know what alt text is, you've left the ball in their court for them to follow up and ask you, or look it up themselves. if you must approach people about this, try it this way. assume nothing other than good faith. they might still feel embarrassed about not knowing. some people might get defensive and/or hostile, still, but at least at that point you aren't the one being a jerk.

sometimes disabilities conflict. to put the onus of maintaining accessibility on disabled people themselves and to expect us to all be perfect at it is some ass-backwards shit. when you do this, you're approaching random strangers with hostility and demands that you should reserve for institutional oppressors. i am not goddamn walgreens making work training videos that don't have any captions. i am not a government organization with a professional social media manager posting vital infographics about storm shelter locations and leaving off alt text. i am just some lady, with physical and psychological limitations on what i'm capable of doing in a day, and when you come into my mentions and shriek at me for not alt texting a photo of my lunch or a drawing i'm currently not capable of verbalizing, and very especially if YOU AREN'T EVEN VISUALLY IMPAIRED, you are being a weird asshole. you cannot call yourself a disability ally while shitting on disabled people for things that they don't do as a result of being disabled. you cannot be a disability ally when you automatically assume "laziness" based on circumstantial evidence. stop trying to means-test whether people with other disabilities deserve to be harassed and/or ostracized. stop coming after us, brandishing your dowsing rods, trying to divine whether or not we're just lazy. for fuck's sake. we get enough of that already. re-arrange your priorities.

(addendum: if you've read all this and you say some shit like "wow, you really wrote this whole essay but writing a few words of alt text sometimes is too hard for you? just say you hate blind people lol"here is a link to the Guinness World Records application form. might i suggest applying for titles such as: Worst-Faith Reader, #1 Point-Misser, or perhaps Most Willful Misinterpreter.)

(fyi, this entry was edited for more clarity/with more thoughts on 7/10/2025)


doodlemancy: a drawing of myself i use as my avatar (Default)
in theory i would like to love and respect the United States Postal Service, a publicly funded service we all deserve and need that does vital and often thankless work

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doodlemancy: a drawing of myself i use as my avatar (Default)
time to sully my mostly pristine dreamwidth with a vent post. content warning for, uh, mentions of a harrowing medical experience? also content warning for oh no my brain is bad.

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